Taking Notes

DalimeetsSimpsonsIt was my turn this week.

My turn to be the advocate. To take the notes. To take in all of the information when my friend was on overload.

Like a friend did for me, I joined a friend of mine for her first appointment with her oncologist to discuss her course of treatment for her breast cancer. Fortunately for my friend, it was caught extremely early. Unfortunately for her, she’s got a family history of multiple types of cancer.

If you haven’t experienced it, getting a cancer diagnosis sends you off into a strange place. Life gets surreal, and for some time you are in emotional shock, IF you realize it. There are so many decisions to be made in a very, very short amount of time. After a few days, everything becomes a blur and it’s hard to keep facts straight. Life becomes a Dali painting.

In my case, by the time I met with my oncologist, I had already been through numerous tests and two surgeries. And I was STILL reeling. So when a friend offered to come with me to see my oncologist, I didn’t even think about saying no. I was so glad she was there, with her pen, scribbling away while I sat there with my brain in first gear. (Precursor to chemo-brain, obviously.)

In my friend’s case, there is to be no chemo, just radiation and possibly some drug therapy. She still has to decide about that. In so many ways, our modern medicine has outstripped our ability to think through all of the possible options we have for our care. It can be almost debilitating when faced with so many choices.

Some people can’t deal with the choices at all. There are two main ways that one can react when faced with a cancer diagnosis.  Some people react with “OMG I’m gonna die”. Others, like me, think, “let’s get on with this and get it over with.” I can’t fathom anything in between. How do you help someone who has gotten this type of news?

One thing you DON’T do. Do NOT send a sympathy card. Yes, believe it or not, I got one. I won’t say from who, but I thought WTF. Why not just go ahead and buy my coffin for me?

There are plenty of ways to show support for your friends who have gotten the Big C diagnosis. Here are more ideas to help you show your friends that you care without being a total jerk.

On the flip side, try to remember that some people just don’t have a clue how to react when people they care about are in trouble. I never made an issue about that sympathy card, because I knew that it was sent with the best of intentions.

nocancerAnd one more thing. I hate pink. The color does nothing for me. Yes, this is Breast Cancer awareness month, but somehow I don’t really think that buying any pink doodads will help cure cancer. What WILL help is de-stressing your life, eating healthy food, exercising, getting regular mammograms, and just loving your life. Pink, Shmink. Be kind to your fellow humans, and help your friends in need. Is that so hard? Anything else is just marketing. I’m fully aware of breast cancer, thank you very much.

On a totally different note, check out my friend’s blog, ENdieChick.com. I’m so glad she took the leap of faith and started her own blog. Good for her! Please check it out.

One More Obamacare Rant

healingthesickI was sitting in a bank yesterday, and Fox News was on the tee vee box. Sarah Palin was being interviewed about Ted Cruz’s upcoming filibuster. Oh Joy. (Dr. Seuss? Picked something really advanced from your library?) Saved only by Mr. Bank Man. The Republicans are at it again – holding the country hostage so they can make yet another attempt to defund the Affordable Care Act, while citizens go hungry and our infrastructure is decaying all around us. Good grief, the Republicans are even quoting the 1936 Soviet Constitution to justify starving poor people.

They claim to be the party of St. Ronald Reagan, but Ronnie would be too liberal for these folks to even elect him dogcatcher today. All that matters is that if the other side is for it, they are against it.

Go ahead, accuse me of being a flaming liberal. (I will admit to voting for St. Ronnie, but I was young and stupid at the time.) If being liberal means that I believe that everyone should have access to health care and health insurance, then just go ahead and carve a giant “L” into my forehead. Guilty as charged.

Let’s take a look at this:

Early last year, I directed the Secretary of Health, Education, and Welfare to prepare a new and improved plan for comprehensive health insurance. That plan, as I indicated in my State of the Union message, has been developed and I am presenting it to the Congress today. I urge its enactment as soon as possible.

The plan is organized around seven principles:

First, it offers every American an opportunity to obtain a balanced, comprehensive range of health insurance benefits;

Second, it will cost no American more than he can afford to pay;
Third, it builds on the strength and diversity of our existing public and private systems of health financing and harmonizes them into an overall system;

Fourth, it uses public funds only where needed and requires no new Federal taxes;

Fifth, it would maintain freedom of choice by patients and ensure that doctors work for their patient, not for the Federal Government.

Sixth, it encourages more effective use of our health care resources;

And finally, it is organized so that all parties would have a direct stake in making the system work–consumer, provider, insurer, State governments and the Federal Government.

Obama? No. Richard Nixon.  Hey, even Nixon was in favor of some sort of socialized health care plan. Impeachment and resignation aside, he couldn’t get elected by the GOP today either.

Or how about this?

America’s children must also have a healthy start in life. In a new term, we will lead an aggressive effort to enroll millions of poor children who are eligible but not signed up for the government’s health insurance programs. We will not allow a lack of attention, or information, to stand between these children and the health care they need.

Source: George W. Bush’s 2004 Republican Convention Acceptance Speech , Sep 2, 2004.

Because I had insurance, I didn’t worry about the cost of calling my doctor when I suspected something was wrong. Surgery? Of course, just go ahead – $300 out of pocket. By the time the second surgery rolled around, I’d met my deductable for the year. When my chemo port broke, it was just another matter of getting it taken care of. Money wasn’t that much of an issue.

I didn’t have to put off my mammograms until I had a tumor eating through my skin. I didn’t have to ask my friends to have charity dances to pay for my medical bills, or set up a lemonade stand to raise money for chemo. I didn’t have to wonder if I was going to die because I couldn’t afford my next chemo treatment.

gop_plan512

Juan Cole just published a great blog post, I lived to See the Day when the Pope and the President of Iran are more doctrinally Flexible than the GOP:

Not since British landlords actually exported food from Ireland for profit during the Great Famine of the 1840s have we seen this kind of hard-heartedness in an elite.

OK, I can understand people having different viewpoints. I understand that there are Liberals, Conservatives, Anarchists, Atheists, Nudists, People Who Put Their Left Shoes On First, what have you. That’s all great. What I can’t understand is how people can stand by and watch their fellow humans die because they don’t have access to health insurance, just because Obama is guilty of presidentin’ while liberal AND black. I am fed up with the dog and pony show that is the current Republican Party. The Affordable Care Act has been upheld by the Supreme Court, the same court the GOP loves when they agree with them.

Here are some actual facts about the Affordable Care Act. There will come a day when “Obamacare” is not used in a pejorative way. Until then, educate yourself on just some of what is actually in the law.

  1. No lifetime limit on coverage for 105 million Americans.
  2. Up to 17 million children with pre-existing conditions can no longer be denied coverage by insurers.
  3. 6.6 million young adults up to age 26 have taken advantage of the law to obtain health insurance through their parents’ plan.
  4. Free coverage for comprehensive preventive services for millions of women starting in August.
  5. 86 million Americans, including 32 million seniors in Medicare, have already received free preventive services.
  6. 5.3 million seniors have already saved $3.7 billion on their prescription drugs.
  7. Since the health care law was enacted in March 2010, 4.2 million private sector jobs have been created – many of them in the health care industry.
  8. The Small Business Health Care Tax Credit has already been used by 360,000 small businesses to help insure 2 million workers.
  9. $1.1 billion in rebates from health insurance companies this summer will benefit nearly 13 million Americans.
  10. The health care law reduces the deficit by $124 billion over the next 10 years and over $1 trillion over the following decade.

So, stay healthy – October 1st is just around the corner, in spite of the GOP’s best efforts.

Eeny, Meeny, Miny, Moe

Eeny, meeny, miny, moe,

Catch a tiger by the toe.

If he hollers, let him go,

Eeny, meeny, miny, moe.Clueless

If only making choices were so easy. If only there were a way to be completely absolved of any of the ramifications of the choices we make every day, our life would be wonderful, right?

Someone I know ended up in jail this weekend because of the choices he made. And I’m so glad he did, because he seemed to think he could charm his way through life. I’m hoping that his time in jail will be a lesson to him that he can’t just claim “young and dumb” and walk away.

We all make bad choices from time to time – I’ve certainly made my share of them, and I know I will continue to make choices that seemed OK at the time but in hindsight were not the best. (Gotta talk with my eye doc about that 20/20 hindsight!) We all find ourselves in difficult situations where we have only unpleasant choices to make, but the question so often not asked is how did we get into those situations in the first place? Sometimes the ‘school of hard knocks’ is a classroom of our own making.

I just finished celebrating the Jewish High Holidays. It’s a time for reflection and making amends to anyone who we’ve harmed with our bad choices. In Judaism, if we have harmed our friends, we have to apologize directly to them and ask them to forgive us; God is not in the position to forgive those sins.

The new rabbi at my synagogue presented an entirely unique take on the meaning of Rosh Hashanah, the New Year and Yom Kippur, the Day of Atonement. He said that not only is Rosh Hashanah the anniversary of the birth of the world, but that it was a new beginning every year. Every year we had the opportunity to start fresh and make better choices in our life. He presented Yom Kippur as not a day that God judges our past actions, but that because we can choose better actions in the future, we will be judged on those.

badchoicesSome choices are dictated by physical addictions, like meth or alcohol. Those that aren’t are usually the result of continued bad habits – we just get in the habit of making certain choices. It’s certainly not easy to make a healthy meal – it’s much easier to grab some fast food on the way home. So we must consciously look at the choices we make every day and make an effort to choose differently if the path we were on wasn’t working.

Two days in jail. Was that enough time to decide that perhaps some different choices are in order? Time will tell.

Hey, Cancer, WTF???

What is it with cancer? Why does just about everybody seem to be getting it these days?

no more cancer

WTF??

Another friend of mine just had surgery this week for a “pre-cancerous lump.” Great. The surgery turned out well, with no surprises. But for that bit of angry cells, she STILL had to go through a lumpectomy and will have to undergo the whole radiation bit.

I’m very glad for her that it was caught early. She’s got a family history of the Big C, and two little girls to raise. Her husband had thyroid cancer. Her sister died from ovarian cancer. Let me just think here a bit. Personally, I know three people who had lymphoma, one who died. One with leukemia. Multiple women who had breast cancer of various types. Men with prostate cancer. Skin cancers galore.

Of course modern medicine is finding more cancers earlier than ever. And we are living longer, so there is more chance of our cells going haywire.

But seriously, W.T.F.?????

My mother has never had a mammogram, and she’s almost 91. But then she was raised on a farm eating naturally grown food. She never pumped her own gas until just before my dad died in 2005. Lived her whole life in a small town, so she wasn’t exposed to the types of pollution I was. My home tested positive for radon. I’ve pumped gas since I was a teenager. I’ve certainly eaten my share of processed food.

It was two years ago that I finished chemo for stage 4 breast cancer. I don’t plan to do that ever again! I feel great! I try to keep my immune system strong, because I am thoroughly convinced that cancer is a disease of the immune system. Everyone has cancer cells in their body, but if your immune system isn’t strong, then those C’s get well out of control. Treatments are better than ever, and I’m living proof of that.

But why the EFF can’t medical science find a cure? Do they even WANT to find a way to stop this disease, or are the researchers all in the pockets of the drug companies? Recently, there have been shortages of  very common and very necessary chemo drugs.

Here’s the money quote:

About two-thirds of drug shortages in recent years were related to quality problems that led manufacturers to stop production, said Margaret Hamburg, commissioner of the Food and Drug Administration, in an April interview with USA TODAY’s editorial board.

Some of the “very real” quality concerns have included rubber fragments, glass shards or microbial contamination in liquid medications, Hamburg said.

“Most of these are made at facilities that are very old,” she said.

Because older generic drugs are less profitable than newer, branded ones, there may be only one or two companies still making them, Gogineni says. If one manufacturer shuts down, that leaves a huge void.

She says she’s concerned about manufacturers prioritizing the most profitable drugs, rather than the most life-saving.

pinkshitSeems to me that if the mechanisms that caused cancer were found, and this beastly disease stopped for good, a whole lot of people would lose a whole lot of money. It’s a damned industry. I’m tired of cute little ribbons and pink blenders and just pink shitty crap.

Cure the damned disease already.

Confessions of a Union Buster

I was looking for something nice and uplifting and fun for Labor Day, but I found this instead. It’s an interview with Martin Jay Levitt, a successful union-buster. Having just gone through a negotiation at work, with what I consider to be a completely ‘choreographed’ outcome, his words struck a very familiar note with me.

While I don’t like paying union dues, I can say that it is money well spent, especially when negotiation time comes. I’ve seen our union lawyers successfully fight for musicians who have lost their jobs. Our union representatives, along with our musicians, just gave up most of their summer to fight for us. Even if I’m not at all thrilled with the outcome, it could have been worse. It could have been another Minnesota.

C’mon, does any CEO really have to make this much money????

The CEO of an S&P 500 Index company made, on average, 354 times the average wage of a rank-and-file U.S. worker in 2012.[1] CEOs in the United States don’t just make a lot more money than their own employees. On average, U.S. CEOs also make far more than CEOs of comparably sized companies in other countries.

2mmyj5i

So on this Labor Day, thank the Labor Union movement. It’s why we have weekends, 8-hour days, safety standards, and a host of other benefits, like, oh, a Labor Day holiday, for example. I have no doubt that my job would be far worse if a union weren’t involved. I have no doubt that the workers at McDonald’s and Wendy’s might not have had to protest for a livable wage if they were members of a union.

Yes, please, I’ll take fries with that. Have a great day off everybody!