The Big C Strikes Again!

No, not me, thank goodness. But another friend had surgery yesterday for colon cancer. His prognosis is good, and more importantly, so is his attitude.

imagesStrangely, he seemed happy after his diagnosis, almost giddy. When I asked him why, he said it’s because “I can finally say what I think!”

AMEN to that! It’s too bad that far too many good people are afraid to say what they think, leaving it up to the morons who should have kept quiet in the first place. Yes, I said that. The Glenn Becks and Ted Cruz’s of the world seem to have a tight fist on the megaphone, drowning out the more reasonable, sane, and informed voices.

This morning in the local paper there was a story about Blue Cross Blue Shield of Tennessee wanting to raise rates by almost 20%. The comments were full of anti-Obama screed, as are most comments in this very red state. But sorry, being the unabashed liberal that I am, I’d rather at least have the option to even GET insurance. (Most likely, the fact that our governor hasn’t seen fit to expand Medicare here has caused a part of this price increase.)

Until the Affordable Care Act, people like me were either stuck in our jobs in order to get health insurance, IF it were offered, or we were completely out in the cold and either went into bankruptcy to pay medical bills, or simply died from lack of care. When the Supreme Court, on one of their more lucid days, upheld the ACA, I jumped for joy, knowing that I and thousands more like me could one day leave our jobs and buy our own insurance.

Not that insurance is perfect. One of my doctors has been fighting with Big Blue for over a month over a test she thinks I need, and they don’t want to pay for. Not the first time, not the last, but why should the insurance company get to make that call? This ‘death panel’ was already well in place before President Obama, and it will continue after he’s gone until we change our entire health care system.

So, back to my friend. With his positive attitude, I’m sure he will do well. I look forward to hearing what he thinks in the days and weeks to come. That’s the end of my short little rant.

Double Marathon!

Wow, the months have flown by. I can’t believe it’s been almost 6 months since my last post. I had entered  the holiday madness of multiple Nutcrackers and Christmas eve gigs until 2 a.m. After that, a new roommate and seven different programs of music to learn (over the “break”, of course) for January. My beloved cat Cinnamon crossed the rainbow bridge, my best friend’s mom (and my second “mom”) died after a long and full life, my cousin’s house burned down, and I finished my taxes. Oh, and I spent New Year’s Day night in a sleep lab. Did I leave anything out? BTW, my friend who had the Whipple has made a remarkable recovery, and she went skiing about a month later.

Fargo MedalThe big news is that I have now finished my first marathon, in Fargo, North Dakota. Running a marathon was unfinished business; I had been diagnosed with cancer just 10 days before I was supposed to run my first one. I felt the time was right,  I was feeling good, and the scheduling gods at work smiled. Fargo it was.

Training went OK but not great. After chemo my legs have been weakened. Whenever the doctor hits my knee cap with the little rubber hammer, there is very little response. So, my gait is rather like a flat-footed Frankenstein monster. Not very efficient for running. Gotta work on that now it’s all over.

My trip to Fargo was an endurance challenge of another kind. What was supposed to be a straightforward journey of Nashville-Dallas-Fargo turned into the trip from hell.

On a sunny morning in Nashville, I left in plenty of time for my 8:15 a.m. flight. We started boarding on time, and only after we were all on board with carry-ons crammed into bins did the captain inform us that there was a slight delay taking off. Storms in Dallas. But we were going to sit on the plane because as soon as the weather cleared we would take off.

Right. Ten minutes led to an hour, led to the snacks and water being passed out so we wouldn’t revolt.The captain reminded us that it was better to be on the ground wishing we were in the air, than in the air and wishing we were on the ground. At the time I wasn’t so sure.

Finally, at ONE P.M., we were allowed to take off, but we were now rerouted to fly around the storms, over New Orleans and Houston. Twenty minutes from landing in Dallas, we were diverted to Wichita Falls because Dallas was shut down due to tornado warnings.

Ah, sunny Wichita Falls Air Force Base. A great place to spend some time on a plane. While we were waiting for weather to clear and the plane to be refueled, I checked my e-mail. Obviously I wasn’t going to make it to Fargo by 2. My flights had been totally changed, thank you American Airlines. I was now going to fly to Chicago at 5:45 p.m., and to Fargo at 8:40. That was the general idea anyway. Honestly, I stopped keeping track of time, until we finally got to Dallas at 5:20.

As big as DFW is, I managed the connection, only to find the flight delayed. I finally had a chance to grab something to eat, the closest thing being a Subway. Not very substantial given that my entire day’s food intake consisted of granola bars and lime in my water. Anyway, my window of opportunity for catching my remaining flight was rapidly closing, so I called my hotel in Fargo and cancelled my room. I really thought I’d be stuck in Chicago for the night. By the time we took off for Chicago, I was in a stupor.  Every take off and landing had been like riding a roller coaster, and there were more storms up north. I began to think that perhaps I shouldn’t have eaten that sandwich…

By the time we arrived in Chicago, I had 10 minutes at one of the busiest airports in the world to make my connection, from the end of one concourse to the end of another one. Oddly enough, another guy was making the same connection, so we sprinted together and we made it. This time, the flight was delayed because part of the crew was stuck somewhere else (Wichita Falls, perhaps?). But I had made it to the final flight! Enough time to call the hotel back and pray they still had a room available for me. After all, 25,000 runners were descending on a city only about 10 times that size, and hotel rooms were at a premium.

Finally at what time I don’t know, we took off for Fargo. This time, even though the flight was bumpy, we got to fly over the storms. By this time it was dark, but at that latitude, there is always a bit of dusk. What an amazing sight! The curve of the earth in the distance, and below me was the most amazing lightning show ever. By this time I could enjoy it, and I had no fear of any gremlins out on the wings.

I finally made it into Fargo at 11:30 p.m. My luggage made it the next day, but fortunately I came a day early, and I had carried with me everything I needed for the big day. So, the only thing I really had to do was catch a bus to pick up my race packet. But my feet were already hurting from the day before. Oh well. I had nothing to complain about. I arrived on the same flight as Sarah Reinertsen, one of the speakers, a girl who is a world class Ironman triathlete – with one leg.

So why did I choose to run the Fargo Marathon? One big reason, as you can see below.

Fargomarathon

Also, I have a friend there, my old college roommate. I lived there for 10 years and hadn’t been back in about 25, so I figured that at the very least reliving old memories would distract me from certain pain. I had never run more than 20 miles in training, before the big C. The longest I’d run in my most recent training was only 16 miles, so I was really forging ahead into unknown territory.

photo 1The day was gorgeous, almost perfect. I caught a ride with a couple of marathoners from Ontario, so at least I didn’t have to walk half a mile to the shuttle. It was sunny and 49 degrees at the start and even 6 hours, 55 minutes, and 29 seconds later when I finished it was overcast and only about 60. Amazing running weather. I finished with a woman who was running her 100th marathon.

photo 3The course was interesting, with a lot of crown support. Not one, but TWO Elvis impersonators, square dancers, bagpipers, accordion players, church choirs, you name it. My feet hurt from the first step, but I was determined to keep going. As I look back on it, I honestly don’t really know how I did it. It was 7 grueling, painful hours, but I couldn’t NOT finish.photo 4

When I finally crossed the finish line, I couldn’t walk anymore.  Well, I could, but I certainly didn’t have the will to. I saw a guy driving a golf cart and asked him for a ride to the bus station, all of three blocks away. Unlike Nashville, all the city buses were free on Marathon day, so I hopped the 15 back to my hotel.

It took me a half an hour to walk the quarter mile to my hotel. Oy.

Next time, I’ll tell you more about the Edith Sanford Breast Cancer Foundation. I had pledged to raise $1000 for them at the marathon, and I accomplished that. Made the pain worth it!

photo 5

Miracle Whip-ple

One of Gary Larson's best!

One of Gary Larson’s best!

I just got back from visiting a friend in the hospital. She had surgery yesterday to remove most of her insides in a life-threatening operation lightly called “the Whipple procedure.” Several months ago, her doctors found ominous spots on her pancreas by accident while she was still in treatment for the aftermath of a burst appendix. She’s one lucky, tough woman.

Unlike me, my friend has a family history of nasty cancers. Even so, it was still a very difficult decision for her to have the surgery, because the lesions were pre-cancerous. But pancreatic cancer is nothing to fool with. So once she decided to have the surgery, she did something that was one of the most courageous and wonderful things I can imagine – she put off the surgery for several months so that she could do all the things she wanted to do one last time, and say all (or almost all) the things she needed to say, in the very likely event that she didn’t make it through the surgery. There is no way I could have done that. It was a very tough decision for her partner to accept, which added another element of stress.

She knew that after the surgery her life would be severely altered. She’d possibly be a diabetic. As for her stomach, she had the equivalent of bariatric surgery and would now be able to eat only small portions. She probably couldn’t drink her home-brewed beer. Oh well. These things are small price to pay in exchange for life.

The Whipple procedure, or pancreaticoduodenectomy, (say that 5 times fast!) was first performed in the early 1900’s. It’s named after Iranian-born Allen Whipple, who improved and refined the procedure in 1935. It is performed today in almost the same way since then. Here’s why it’s so nasty. First, the surgeon has to take out a lot of stuff – part of the stomach, the entire gall bladder and bile duct, part or all of the pancreas, a good section of small intestine, and surrounding lymph nodes. Then he/she has to put it all back together again in such a way that food can actually be digested. This is not your typical childhood game of “Operation”!images

The good news is that the surgery went well, even better than expected. The doctor thinks that she will very likely NOT become diabetic, and all the margins around the lesions were clean. I’m sure my friend does not and will not remember much about yesterday and the week ahead. She was pretty much in a drug induced fog because of the pain, but she will be up and around very soon, maybe even having a small sip of her home brew, which she no doubt will enjoy much more than the ice chips she was sucking on today. I left her and her partner both on the verge of sleep after a very long night. Matzah ball soup to follow.

So take from her these lessons:

Live your life.

Have no regrets.

Do it now.Have-no-regrets

 

PTSD and Cancer

Bad hairI woke up this morning looking like I had been in a war zone. Hair all askew, overslept by almost an hour and a half – NOT on purpose. My feet hurt (a remnant of chemo) and I felt like I had done battle all night instead of getting that good night’s sleep that seems to constantly evade me. It was my cat Pepper who finally convinced me that I needed to get out of bed to feed her.

It’s been two and a half years since my cancer diagnosis, and almost two years since I finished my chemo and radiation. You’d think that would be the end of it, but NOOOOOO. In my case, I have to take a pill daily, and every month I have my chemo port flushed and get a shot to prevent recurrence of the bone metastases. That’s all well and good, and actually it’s quite helpful, because I’m still actively doing something to prevent the Big C from visiting again.

But there are other issues to deal with. I am no longer in crisis mode. I no longer need help with anything around the house or any other tasks I couldn’t do for myself when I was sick. I can certainly make my own toast…

Unfortunately for me, and for many cancer survivors, there comes the time when you still feel the stresses of initial trauma, but to the outside world you are normal, healthy, and fully functional. And, just the fact that you are no longer actively fighting the disease can cause stress, especially when you have other major stress factors in your life like I do. (They shall remain nameless for now, although the words ‘toxic s**thole) come to mind…)

ptsd injurySo imagine my surprise when I googled, “cancer PTSD”. Tons of websites. There’s a name for what I feel. Seriously, who wouldn’t have PTSD when you’ve been blindsided by a cancer diagnosis that goes from Stage 1 to 4 in a matter of weeks? And here I thought I’d done pretty well handling all of it.

As it turns out, 1 in 4 women who have been newly diagnosed with breast cancer experience symptoms of PTSD. Apparently it’s quite common for cancer survivors, or anyone with a life-threatening illness, to develop PTSD. We know it best from soldiers coming back from Iraq and Afghanistan. What is PTSD?

According the National Institute of Mental Health,

When in danger, it’s natural to feel afraid. This fear triggers many split-second changes in the body to prepare to defend against the danger or to avoid it. This “fight-or-flight” response is a healthy reaction meant to protect a person from harm. But in post-traumatic stress disorder (PTSD), this reaction is changed or damaged. People who have PTSD may feel stressed or frightened even when they’re no longer in danger.

Cancer.gov devotes an entire section of its website to PTSD in cancer patients. It’s a great resource, not only for PTSD, but for all aspects of cancer treatment.

No one really knows why one person gets PTSD and another one under similar circumstances doesn’t. There is a ton of research to show that the brain changes physically, but researchers don’t know exactly what those changes mean.

One thing is for sure. You don’t get over it by yourself. The basic treatments are therapy, either alone or group, and/or medication, depending on the severity of the problem. Our society doesn’t look kindly on anyone who seeks therapy, thinking them weak, crazy, or lazy. It has also been a red flag for insurance companies to deny coverage. (Thank you, Affordable Care Act!)

All this to say that I’ve finally realized that I can’t deal with this by myself, and I’ve started some targeted therapy to grapple with this issue. Not a moment too soon either – my last blood count showed a very low white blood cell count, which means my immune system is weak. Due to stress, no doubt in my mind. The LAST thing I want is for this cancer to make a return visit.

I’ll keep y’all posted!

 

 

Mind Over Matter

HappinessI am absolutely convinced that my state of mind during my cancer treatment played a major part in my recovery from Stage 4 breast cancer. I’ve always been rather ‘new-agey’ in my belief that I really can direct the outcome of my life with my thoughts and feelings. Of course the various treatments helped, but the bottom line was that I always believed that I would get better.

And as I’ve said before, this was not a Pollyanna-type sense of looking at everything through rose-colored glasses. This was DECIDING that I could choose how I reacted to the situations I found myself in. This philosophy is something that I try to carry over in all areas of my life. I don’t like to quote Henry Ford, but it’s apt here, “Whether you think you can, or you think you can’t, you’re right.” As Martha Beck writes,

Solving a knotty problem can help us be happy, but we don’t have to be happy to feel good. If that sounds crazy, try this: Focus on something that makes you miserable. Then think, “I must stay happy!” Stressful, isn’t it? Now say, “It’s okay to be as sad as I need to be.” This kind of permission to feel as we feel — not continuous happiness — is the foundation of well-being.

You can’t know what happiness is unless you know all of the other emotions. But too many people don’t know what happiness is, because they think it’s having money, or success, or any number of other doodads that they think equals ‘happiness.’

be happyThat’s why I want to tell you about this new website. It’s called LiveHappy. The concept is that you can simply spread happiness, and it’s totally free! There will be a magazine coming in November that will feature all sorts of tips on how to improve your life and your happiness. The first cover will feature Ron Howard, who has certainly had quite a life in front and behind the cameras. This is a website that will help you get your priorities straight and find out what it really means to be happy.

MyLiveHappy.com is the brainchild of Jeff Olson, Shawn Achor, and others. Their philosophy is that happiness precedes success, and that you can choose to be happy. With this website, we can be “Happiness Ambassadors” and we can see how far our happiness can spread. And as I said, it’s totally free. The site is full of positive, uplifting stories which can help you create a completely different mindset than if you start your day watching the news.

I once worked with a lovable but crusty guy who kept telling people that he would be dead by 60. There was nothing wrong with him when I met him, but when he was 59 he was diagnosed with cancer. He was dead by 60.

Words matter. Thoughts matter. CHOOSE to be happy today.